Hi and Welcome....

The reason for my blog is that Colin had Metastatic Renal Cell Carcinoma (secondary kidney cancer). In addition to this, his eldest brother David died in April 2008, 5 weeks after being diagnosed with Laryngeal Cancer and his elder sister Sue was diagnosed with Lobular Breast Cancer in March 2009. All that said, I am still smiling and trying to be up beat about everything because if I wasn’t I don’t think I would cope as well as I have so far. Sadly Colin passed away on 23rd Dec 2009.

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Thursday, 26 November 2009

Appointments and even more appointments

After having had both Flu jabs (normal and swine) and checked that the scar from his operation had completely healed, Colin started taking Sutent again on 20th November.
On Monday 23rd we went to ROH (Royal Orthopaedic Hospital) for Colin's first check up after his Op.

When we arrived in the car park it was very windy and as Col let go of his wheels (walking aid) to put on his coat - they proceeded to go off down the car park on their own with Col trying to run after them shouting (very quietly) HELP!!!! I didn't know anything was wrong as I was getting his phone out of the car for him until I saw him trying to catch up with them (not very successfully) HA HA!!! Thanks to a nice lady who was crossing the car park they didn't hit any cars on their travels and the man in the security cabin might have stopped them if he hadn't been laughing so much.

Anyway back to the reason we were there, first he had to go for an x-ray and then we saw the Oncology Nurse who checked Colin's reflex's - yes there were some - ha ha, she said he is doing very well and should gain muscle tone back in his thighs eventually.



We now have photos of Colin's spine and the work that Mr Stirl
ing did to it, the first is of his spine from the back and shows the titanium bracket and the second is the side view which shows the bracket and two bright patches which are cement.



We have also been to the QE today to see Prof Nick James to discuss Colin's treatment plan and starting a course of 10 fractions Radiotherapy on the spine as soon as possible. He suggested having the Radiotherapy in the two week break between cycles of Sutent but I pointed out that that would be over Christmas and New Year and probably not a good time. He agreed with this and is arranging for a Planning Meeting hopefully for next week with a CT Scan asap and starting the Radiotherapy sessions very soon.



Wednesday, 18 November 2009

Steroids & Sutent

The steroids seem to be doing their job and Colin is back to his normal self (normal as far as Colin & steroids are concerned).

His back has healed well and his walking is improving tremendously (he can almost keep up with me now) which means I don't have to keep stopping and waiting for him to catch me up ;)

Now that his back has healed and he has had his flu & swine flu jabs he should be able to start taking Sutent again, just waiting to hear from Dr P if that's OK.